Developing Consensus-Based Priority Outcome Domains for Trials in Kidney Transplantation: A Multinational Delphi Survey With Patients, Caregivers, and Health Professionals.
Identifieur interne : 000E44 ( Main/Exploration ); précédent : 000E43; suivant : 000E45Developing Consensus-Based Priority Outcome Domains for Trials in Kidney Transplantation: A Multinational Delphi Survey With Patients, Caregivers, and Health Professionals.
Auteurs : Bénédicte Sautenet [Australie] ; Allison Tong ; Karine E. Manera ; Jeremy R. Chapman ; Anthony N. Warrens ; David Rosenbloom ; Germaine Wong ; John Gill ; Klemens Budde ; Lionel Rostaing ; Lorna Marson ; Michelle A. Josephson ; Peter P. Reese ; Timothy L. Pruett ; Camilla S. Hanson ; Donal O'Donoghue ; Helen Tam-Tham ; Jean-Michel Halimi ; Jenny I. Shen ; John Kanellis ; John D. Scandling ; Kirsten Howard ; Martin Howell ; Nick Cross ; Nicole Evangelidis ; Philip Masson ; Rainer Oberbauer ; Samuel Fung ; Shilpa Jesudason ; Simon Knight ; Sreedhar Mandayam ; Stephen P. Mcdonald ; Steve Chadban ; Tasleem Rajan ; Jonathan C. CraigSource :
- Transplantation [ 1534-6080 ] ; 2017.
Descripteurs français
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- MESH :
English descriptors
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- MESH :
Abstract
Inconsistencies in outcome reporting and frequent omission of patient-centered outcomes can diminish the value of trials in treatment decision making. We identified critically important outcome domains in kidney transplantation based on the shared priorities of patients/caregivers and health professionals.
DOI: 10.1097/TP.0000000000001776
PubMed: 28738403
Affiliations:
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<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en">Developing Consensus-Based Priority Outcome Domains for Trials in Kidney Transplantation: A Multinational Delphi Survey With Patients, Caregivers, and Health Professionals.</title><author><name sortKey="Sautenet, Benedicte" sort="Sautenet, Benedicte" uniqKey="Sautenet B" first="Bénédicte" last="Sautenet">Bénédicte Sautenet</name><affiliation wicri:level="4"><nlm:affiliation>1 Sydney School of Public Health, The University of Sydney, Sydney, Australia.2 Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, Sydney, Australia.3 Faculté de Médecine, Université Francois Rabelais, Tours, France.4 Department of Nephrology and Clinical Immunology, Tours Hospital, Tours, France.5 INSERM, U1246, Tours, France.6 Centre for Transplant and Renal Research, Westmead Hospital, Sydney, Australia.7 School of Medicine and Dentistry, Queen Mary University of London, London, United Kingdom.8 ESRD Network 18, Los Angeles, CA.9 Division of Nephrology, University of British Columbia, Vancouver, Canada.10 Department of Nephrology, Charité - Universitätsmedizin Berlin, Germany.11 Department of Nephrology, Dialysis and Organ Transplantation, Centre Hospitalier Universitaire, Rangueil, Toulouse, France.12 Transplant Unit, University of Edinburgh, Edinburgh, United Kingdom.13 Department of Medicine, The University of Chicago, Chicago, IL.14 Renal Division, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.15 Department of Surgery, University of Minnesota, Minneapolis, MN.16 Department of Renal Medicine, Salford Royal NHS Foundation Trust, Salford, United Kingdom.17 Department Community Health Sciences, University of Calgary, Calgary, Canada.18 Department of Nephrology, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Los Angeles, CA.19 Department of Nephrology, Monash Health and Centre for Inflammatory Diseases, Department of Medicine, Monash University, Clayton, Victoria, Australia.20 Department of Medicine, Stanford University School of Medicine, Stanford, CA.21 Department of Nephrology, Christchurch Hospital, Christchurch, New Zealand.22 Department of Renal Medicine, Royal Infirmary of Edinburgh, Edinburgh, Scotland, United Kingdom.23 Department of Internal Medicine, Division of Nephrology, University of Vienna, Austria.24 Jockey Club Nephrology and Urology Centre, Princess Margaret Hospital, Hong Kong.25 Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, Adelaide, South Australia, Australia.26 Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, Australia.27 Centre for Evidence in Transplantation, Nuffield Department of Surgical Sciences, University of Oxford, Oxford, United Kingdom.28 Selzman Institute for Kidney Health, Section of Nephrology, Baylor College of Medicine, Houston, TX.29 ANZDATA Registry, South Australia Health and Medical Research Institute, Adelaide, Australia.30 Renal Medicine and Transplantation, Royal Prince Alfred Hospital, Sydney, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>1 Sydney School of Public Health, The University of Sydney, Sydney, Australia.2 Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, Sydney, Australia.3 Faculté de Médecine, Université Francois Rabelais, Tours, France.4 Department of Nephrology and Clinical Immunology, Tours Hospital, Tours, France.5 INSERM, U1246, Tours, France.6 Centre for Transplant and Renal Research, Westmead Hospital, Sydney, Australia.7 School of Medicine and Dentistry, Queen Mary University of London, London, United Kingdom.8 ESRD Network 18, Los Angeles, CA.9 Division of Nephrology, University of British Columbia, Vancouver, Canada.10 Department of Nephrology, Charité - Universitätsmedizin Berlin, Germany.11 Department of Nephrology, Dialysis and Organ Transplantation, Centre Hospitalier Universitaire, Rangueil, Toulouse, France.12 Transplant Unit, University of Edinburgh, Edinburgh, United Kingdom.13 Department of Medicine, The University of Chicago, Chicago, IL.14 Renal Division, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.15 Department of Surgery, University of Minnesota, Minneapolis, MN.16 Department of Renal Medicine, Salford Royal NHS Foundation Trust, Salford, United Kingdom.17 Department Community Health Sciences, University of Calgary, Calgary, Canada.18 Department of Nephrology, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Los Angeles, CA.19 Department of Nephrology, Monash Health and Centre for Inflammatory Diseases, Department of Medicine, Monash University, Clayton, Victoria, Australia.20 Department of Medicine, Stanford University School of Medicine, Stanford, CA.21 Department of Nephrology, Christchurch Hospital, Christchurch, New Zealand.22 Department of Renal Medicine, Royal Infirmary of Edinburgh, Edinburgh, Scotland, United Kingdom.23 Department of Internal Medicine, Division of Nephrology, University of Vienna, Austria.24 Jockey Club Nephrology and Urology Centre, Princess Margaret Hospital, Hong Kong.25 Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, Adelaide, South Australia, Australia.26 Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, Australia.27 Centre for Evidence in Transplantation, Nuffield Department of Surgical Sciences, University of Oxford, Oxford, United Kingdom.28 Selzman Institute for Kidney Health, Section of Nephrology, Baylor College of Medicine, Houston, TX.29 ANZDATA Registry, South Australia Health and Medical Research Institute, Adelaide, Australia.30 Renal Medicine and Transplantation, Royal Prince Alfred Hospital, Sydney</wicri:regionArea><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region><settlement type="city">Sydney</settlement></placeName><orgName type="university">Université de Sydney</orgName></affiliation></author><author><name sortKey="Tong, Allison" sort="Tong, Allison" uniqKey="Tong A" first="Allison" last="Tong">Allison Tong</name></author><author><name sortKey="Manera, Karine E" sort="Manera, Karine E" uniqKey="Manera K" first="Karine E" last="Manera">Karine E. Manera</name></author><author><name sortKey="Chapman, Jeremy R" sort="Chapman, Jeremy R" uniqKey="Chapman J" first="Jeremy R" last="Chapman">Jeremy R. Chapman</name></author><author><name sortKey="Warrens, Anthony N" sort="Warrens, Anthony N" uniqKey="Warrens A" first="Anthony N" last="Warrens">Anthony N. Warrens</name></author><author><name sortKey="Rosenbloom, David" sort="Rosenbloom, David" uniqKey="Rosenbloom D" first="David" last="Rosenbloom">David Rosenbloom</name></author><author><name sortKey="Wong, Germaine" sort="Wong, Germaine" uniqKey="Wong G" first="Germaine" last="Wong">Germaine Wong</name></author><author><name sortKey="Gill, John" sort="Gill, John" uniqKey="Gill J" first="John" last="Gill">John Gill</name></author><author><name sortKey="Budde, Klemens" sort="Budde, Klemens" uniqKey="Budde K" first="Klemens" last="Budde">Klemens Budde</name></author><author><name sortKey="Rostaing, Lionel" sort="Rostaing, Lionel" uniqKey="Rostaing L" first="Lionel" last="Rostaing">Lionel Rostaing</name></author><author><name sortKey="Marson, Lorna" sort="Marson, Lorna" uniqKey="Marson L" first="Lorna" last="Marson">Lorna Marson</name></author><author><name sortKey="Josephson, Michelle A" sort="Josephson, Michelle A" uniqKey="Josephson M" first="Michelle A" last="Josephson">Michelle A. Josephson</name></author><author><name sortKey="Reese, Peter P" sort="Reese, Peter P" uniqKey="Reese P" first="Peter P" last="Reese">Peter P. Reese</name></author><author><name sortKey="Pruett, Timothy L" sort="Pruett, Timothy L" uniqKey="Pruett T" first="Timothy L" last="Pruett">Timothy L. Pruett</name></author><author><name sortKey="Hanson, Camilla S" sort="Hanson, Camilla S" uniqKey="Hanson C" first="Camilla S" last="Hanson">Camilla S. Hanson</name></author><author><name sortKey="O Donoghue, Donal" sort="O Donoghue, Donal" uniqKey="O Donoghue D" first="Donal" last="O'Donoghue">Donal O'Donoghue</name></author><author><name sortKey="Tam Tham, Helen" sort="Tam Tham, Helen" uniqKey="Tam Tham H" first="Helen" last="Tam-Tham">Helen Tam-Tham</name></author><author><name sortKey="Halimi, Jean Michel" sort="Halimi, Jean Michel" uniqKey="Halimi J" first="Jean-Michel" last="Halimi">Jean-Michel Halimi</name></author><author><name sortKey="Shen, Jenny I" sort="Shen, Jenny I" uniqKey="Shen J" first="Jenny I" last="Shen">Jenny I. Shen</name></author><author><name sortKey="Kanellis, John" sort="Kanellis, John" uniqKey="Kanellis J" first="John" last="Kanellis">John Kanellis</name></author><author><name sortKey="Scandling, John D" sort="Scandling, John D" uniqKey="Scandling J" first="John D" last="Scandling">John D. Scandling</name></author><author><name sortKey="Howard, Kirsten" sort="Howard, Kirsten" uniqKey="Howard K" first="Kirsten" last="Howard">Kirsten Howard</name></author><author><name sortKey="Howell, Martin" sort="Howell, Martin" uniqKey="Howell M" first="Martin" last="Howell">Martin Howell</name></author><author><name sortKey="Cross, Nick" sort="Cross, Nick" uniqKey="Cross N" first="Nick" last="Cross">Nick Cross</name></author><author><name sortKey="Evangelidis, Nicole" sort="Evangelidis, Nicole" uniqKey="Evangelidis N" first="Nicole" last="Evangelidis">Nicole Evangelidis</name></author><author><name sortKey="Masson, Philip" sort="Masson, Philip" uniqKey="Masson P" first="Philip" last="Masson">Philip Masson</name></author><author><name sortKey="Oberbauer, Rainer" sort="Oberbauer, Rainer" uniqKey="Oberbauer R" first="Rainer" last="Oberbauer">Rainer Oberbauer</name></author><author><name sortKey="Fung, Samuel" sort="Fung, Samuel" uniqKey="Fung S" first="Samuel" last="Fung">Samuel Fung</name></author><author><name sortKey="Jesudason, Shilpa" sort="Jesudason, Shilpa" uniqKey="Jesudason S" first="Shilpa" last="Jesudason">Shilpa Jesudason</name></author><author><name sortKey="Knight, Simon" sort="Knight, Simon" uniqKey="Knight S" first="Simon" last="Knight">Simon Knight</name></author><author><name sortKey="Mandayam, Sreedhar" sort="Mandayam, Sreedhar" uniqKey="Mandayam S" first="Sreedhar" last="Mandayam">Sreedhar Mandayam</name></author><author><name sortKey="Mcdonald, Stephen P" sort="Mcdonald, Stephen P" uniqKey="Mcdonald S" first="Stephen P" last="Mcdonald">Stephen P. Mcdonald</name></author><author><name sortKey="Chadban, Steve" sort="Chadban, Steve" uniqKey="Chadban S" first="Steve" last="Chadban">Steve Chadban</name></author><author><name sortKey="Rajan, Tasleem" sort="Rajan, Tasleem" uniqKey="Rajan T" first="Tasleem" last="Rajan">Tasleem Rajan</name></author><author><name sortKey="Craig, Jonathan C" sort="Craig, Jonathan C" uniqKey="Craig J" first="Jonathan C" last="Craig">Jonathan C. Craig</name></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2017">2017</date><idno type="RBID">pubmed:28738403</idno><idno type="pmid">28738403</idno><idno type="doi">10.1097/TP.0000000000001776</idno><idno type="wicri:Area/PubMed/Corpus">000718</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">000718</idno><idno type="wicri:Area/PubMed/Curation">000715</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">000715</idno><idno type="wicri:Area/PubMed/Checkpoint">000715</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">000715</idno><idno type="wicri:Area/Ncbi/Merge">004B76</idno><idno type="wicri:Area/Ncbi/Curation">004B76</idno><idno type="wicri:Area/Ncbi/Checkpoint">004B76</idno><idno type="wicri:Area/Main/Merge">000E39</idno><idno type="wicri:Area/Main/Curation">000E44</idno><idno type="wicri:Area/Main/Exploration">000E44</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Developing Consensus-Based Priority Outcome Domains for Trials in Kidney Transplantation: A Multinational Delphi Survey With Patients, Caregivers, and Health Professionals.</title><author><name sortKey="Sautenet, Benedicte" sort="Sautenet, Benedicte" uniqKey="Sautenet B" first="Bénédicte" last="Sautenet">Bénédicte Sautenet</name><affiliation wicri:level="4"><nlm:affiliation>1 Sydney School of Public Health, The University of Sydney, Sydney, Australia.2 Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, Sydney, Australia.3 Faculté de Médecine, Université Francois Rabelais, Tours, France.4 Department of Nephrology and Clinical Immunology, Tours Hospital, Tours, France.5 INSERM, U1246, Tours, France.6 Centre for Transplant and Renal Research, Westmead Hospital, Sydney, Australia.7 School of Medicine and Dentistry, Queen Mary University of London, London, United Kingdom.8 ESRD Network 18, Los Angeles, CA.9 Division of Nephrology, University of British Columbia, Vancouver, Canada.10 Department of Nephrology, Charité - Universitätsmedizin Berlin, Germany.11 Department of Nephrology, Dialysis and Organ Transplantation, Centre Hospitalier Universitaire, Rangueil, Toulouse, France.12 Transplant Unit, University of Edinburgh, Edinburgh, United Kingdom.13 Department of Medicine, The University of Chicago, Chicago, IL.14 Renal Division, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.15 Department of Surgery, University of Minnesota, Minneapolis, MN.16 Department of Renal Medicine, Salford Royal NHS Foundation Trust, Salford, United Kingdom.17 Department Community Health Sciences, University of Calgary, Calgary, Canada.18 Department of Nephrology, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Los Angeles, CA.19 Department of Nephrology, Monash Health and Centre for Inflammatory Diseases, Department of Medicine, Monash University, Clayton, Victoria, Australia.20 Department of Medicine, Stanford University School of Medicine, Stanford, CA.21 Department of Nephrology, Christchurch Hospital, Christchurch, New Zealand.22 Department of Renal Medicine, Royal Infirmary of Edinburgh, Edinburgh, Scotland, United Kingdom.23 Department of Internal Medicine, Division of Nephrology, University of Vienna, Austria.24 Jockey Club Nephrology and Urology Centre, Princess Margaret Hospital, Hong Kong.25 Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, Adelaide, South Australia, Australia.26 Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, Australia.27 Centre for Evidence in Transplantation, Nuffield Department of Surgical Sciences, University of Oxford, Oxford, United Kingdom.28 Selzman Institute for Kidney Health, Section of Nephrology, Baylor College of Medicine, Houston, TX.29 ANZDATA Registry, South Australia Health and Medical Research Institute, Adelaide, Australia.30 Renal Medicine and Transplantation, Royal Prince Alfred Hospital, Sydney, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>1 Sydney School of Public Health, The University of Sydney, Sydney, Australia.2 Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, Sydney, Australia.3 Faculté de Médecine, Université Francois Rabelais, Tours, France.4 Department of Nephrology and Clinical Immunology, Tours Hospital, Tours, France.5 INSERM, U1246, Tours, France.6 Centre for Transplant and Renal Research, Westmead Hospital, Sydney, Australia.7 School of Medicine and Dentistry, Queen Mary University of London, London, United Kingdom.8 ESRD Network 18, Los Angeles, CA.9 Division of Nephrology, University of British Columbia, Vancouver, Canada.10 Department of Nephrology, Charité - Universitätsmedizin Berlin, Germany.11 Department of Nephrology, Dialysis and Organ Transplantation, Centre Hospitalier Universitaire, Rangueil, Toulouse, France.12 Transplant Unit, University of Edinburgh, Edinburgh, United Kingdom.13 Department of Medicine, The University of Chicago, Chicago, IL.14 Renal Division, University of Pennsylvania Perelman School of Medicine, Philadelphia, PA.15 Department of Surgery, University of Minnesota, Minneapolis, MN.16 Department of Renal Medicine, Salford Royal NHS Foundation Trust, Salford, United Kingdom.17 Department Community Health Sciences, University of Calgary, Calgary, Canada.18 Department of Nephrology, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Los Angeles, CA.19 Department of Nephrology, Monash Health and Centre for Inflammatory Diseases, Department of Medicine, Monash University, Clayton, Victoria, Australia.20 Department of Medicine, Stanford University School of Medicine, Stanford, CA.21 Department of Nephrology, Christchurch Hospital, Christchurch, New Zealand.22 Department of Renal Medicine, Royal Infirmary of Edinburgh, Edinburgh, Scotland, United Kingdom.23 Department of Internal Medicine, Division of Nephrology, University of Vienna, Austria.24 Jockey Club Nephrology and Urology Centre, Princess Margaret Hospital, Hong Kong.25 Central and Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, Adelaide, South Australia, Australia.26 Faculty of Health and Medical Sciences, University of Adelaide, Adelaide, Australia.27 Centre for Evidence in Transplantation, Nuffield Department of Surgical Sciences, University of Oxford, Oxford, United Kingdom.28 Selzman Institute for Kidney Health, Section of Nephrology, Baylor College of Medicine, Houston, TX.29 ANZDATA Registry, South Australia Health and Medical Research Institute, Adelaide, Australia.30 Renal Medicine and Transplantation, Royal Prince Alfred Hospital, Sydney</wicri:regionArea><placeName><settlement type="city">Sydney</settlement><region type="état">Nouvelle-Galles du Sud</region><settlement type="city">Sydney</settlement></placeName><orgName type="university">Université de Sydney</orgName></affiliation></author><author><name sortKey="Tong, Allison" sort="Tong, Allison" uniqKey="Tong A" first="Allison" last="Tong">Allison Tong</name></author><author><name sortKey="Manera, Karine E" sort="Manera, Karine E" uniqKey="Manera K" first="Karine E" last="Manera">Karine E. Manera</name></author><author><name sortKey="Chapman, Jeremy R" sort="Chapman, Jeremy R" uniqKey="Chapman J" first="Jeremy R" last="Chapman">Jeremy R. Chapman</name></author><author><name sortKey="Warrens, Anthony N" sort="Warrens, Anthony N" uniqKey="Warrens A" first="Anthony N" last="Warrens">Anthony N. Warrens</name></author><author><name sortKey="Rosenbloom, David" sort="Rosenbloom, David" uniqKey="Rosenbloom D" first="David" last="Rosenbloom">David Rosenbloom</name></author><author><name sortKey="Wong, Germaine" sort="Wong, Germaine" uniqKey="Wong G" first="Germaine" last="Wong">Germaine Wong</name></author><author><name sortKey="Gill, John" sort="Gill, John" uniqKey="Gill J" first="John" last="Gill">John Gill</name></author><author><name sortKey="Budde, Klemens" sort="Budde, Klemens" uniqKey="Budde K" first="Klemens" last="Budde">Klemens Budde</name></author><author><name sortKey="Rostaing, Lionel" sort="Rostaing, Lionel" uniqKey="Rostaing L" first="Lionel" last="Rostaing">Lionel Rostaing</name></author><author><name sortKey="Marson, Lorna" sort="Marson, Lorna" uniqKey="Marson L" first="Lorna" last="Marson">Lorna Marson</name></author><author><name sortKey="Josephson, Michelle A" sort="Josephson, Michelle A" uniqKey="Josephson M" first="Michelle A" last="Josephson">Michelle A. Josephson</name></author><author><name sortKey="Reese, Peter P" sort="Reese, Peter P" uniqKey="Reese P" first="Peter P" last="Reese">Peter P. Reese</name></author><author><name sortKey="Pruett, Timothy L" sort="Pruett, Timothy L" uniqKey="Pruett T" first="Timothy L" last="Pruett">Timothy L. Pruett</name></author><author><name sortKey="Hanson, Camilla S" sort="Hanson, Camilla S" uniqKey="Hanson C" first="Camilla S" last="Hanson">Camilla S. Hanson</name></author><author><name sortKey="O Donoghue, Donal" sort="O Donoghue, Donal" uniqKey="O Donoghue D" first="Donal" last="O'Donoghue">Donal O'Donoghue</name></author><author><name sortKey="Tam Tham, Helen" sort="Tam Tham, Helen" uniqKey="Tam Tham H" first="Helen" last="Tam-Tham">Helen Tam-Tham</name></author><author><name sortKey="Halimi, Jean Michel" sort="Halimi, Jean Michel" uniqKey="Halimi J" first="Jean-Michel" last="Halimi">Jean-Michel Halimi</name></author><author><name sortKey="Shen, Jenny I" sort="Shen, Jenny I" uniqKey="Shen J" first="Jenny I" last="Shen">Jenny I. Shen</name></author><author><name sortKey="Kanellis, John" sort="Kanellis, John" uniqKey="Kanellis J" first="John" last="Kanellis">John Kanellis</name></author><author><name sortKey="Scandling, John D" sort="Scandling, John D" uniqKey="Scandling J" first="John D" last="Scandling">John D. Scandling</name></author><author><name sortKey="Howard, Kirsten" sort="Howard, Kirsten" uniqKey="Howard K" first="Kirsten" last="Howard">Kirsten Howard</name></author><author><name sortKey="Howell, Martin" sort="Howell, Martin" uniqKey="Howell M" first="Martin" last="Howell">Martin Howell</name></author><author><name sortKey="Cross, Nick" sort="Cross, Nick" uniqKey="Cross N" first="Nick" last="Cross">Nick Cross</name></author><author><name sortKey="Evangelidis, Nicole" sort="Evangelidis, Nicole" uniqKey="Evangelidis N" first="Nicole" last="Evangelidis">Nicole Evangelidis</name></author><author><name sortKey="Masson, Philip" sort="Masson, Philip" uniqKey="Masson P" first="Philip" last="Masson">Philip Masson</name></author><author><name sortKey="Oberbauer, Rainer" sort="Oberbauer, Rainer" uniqKey="Oberbauer R" first="Rainer" last="Oberbauer">Rainer Oberbauer</name></author><author><name sortKey="Fung, Samuel" sort="Fung, Samuel" uniqKey="Fung S" first="Samuel" last="Fung">Samuel Fung</name></author><author><name sortKey="Jesudason, Shilpa" sort="Jesudason, Shilpa" uniqKey="Jesudason S" first="Shilpa" last="Jesudason">Shilpa Jesudason</name></author><author><name sortKey="Knight, Simon" sort="Knight, Simon" uniqKey="Knight S" first="Simon" last="Knight">Simon Knight</name></author><author><name sortKey="Mandayam, Sreedhar" sort="Mandayam, Sreedhar" uniqKey="Mandayam S" first="Sreedhar" last="Mandayam">Sreedhar Mandayam</name></author><author><name sortKey="Mcdonald, Stephen P" sort="Mcdonald, Stephen P" uniqKey="Mcdonald S" first="Stephen P" last="Mcdonald">Stephen P. Mcdonald</name></author><author><name sortKey="Chadban, Steve" sort="Chadban, Steve" uniqKey="Chadban S" first="Steve" last="Chadban">Steve Chadban</name></author><author><name sortKey="Rajan, Tasleem" sort="Rajan, Tasleem" uniqKey="Rajan T" first="Tasleem" last="Rajan">Tasleem Rajan</name></author><author><name sortKey="Craig, Jonathan C" sort="Craig, Jonathan C" uniqKey="Craig J" first="Jonathan C" last="Craig">Jonathan C. Craig</name></author></analytic><series><title level="j">Transplantation</title><idno type="eISSN">1534-6080</idno><imprint><date when="2017" type="published">2017</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adolescent</term><term>Adult</term><term>Aged</term><term>Caregivers (standards)</term><term>Clinical Trials as Topic (standards)</term><term>Consensus</term><term>Delphi Technique</term><term>Health Personnel (standards)</term><term>Humans</term><term>Kidney Transplantation (standards)</term><term>Middle Aged</term><term>Outcome Assessment (Health Care)</term><term>Surveys and Questionnaires</term><term>Young Adult</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adolescent</term><term>Adulte</term><term>Adulte d'âge moyen</term><term>Aidants (normes)</term><term>Consensus</term><term>Enquêtes et questionnaires</term><term>Essais cliniques comme sujet (normes)</term><term>Humains</term><term>Jeune adulte</term><term>Méthode Delphi</term><term>Personnel de santé (normes)</term><term>Sujet âgé</term><term>Transplantation rénale (normes)</term><term>Évaluation de résultat (soins)</term></keywords><keywords scheme="MESH" qualifier="normes" xml:lang="fr"><term>Aidants</term><term>Essais cliniques comme sujet</term><term>Personnel de santé</term><term>Transplantation rénale</term></keywords><keywords scheme="MESH" qualifier="standards" xml:lang="en"><term>Caregivers</term><term>Clinical Trials as Topic</term><term>Health Personnel</term><term>Kidney Transplantation</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adolescent</term><term>Adult</term><term>Aged</term><term>Consensus</term><term>Delphi Technique</term><term>Humans</term><term>Middle Aged</term><term>Outcome Assessment (Health Care)</term><term>Surveys and Questionnaires</term><term>Young Adult</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term><term>Adulte</term><term>Adulte d'âge moyen</term><term>Consensus</term><term>Enquêtes et questionnaires</term><term>Humains</term><term>Jeune adulte</term><term>Méthode Delphi</term><term>Sujet âgé</term><term>Évaluation de résultat (soins)</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Inconsistencies in outcome reporting and frequent omission of patient-centered outcomes can diminish the value of trials in treatment decision making. We identified critically important outcome domains in kidney transplantation based on the shared priorities of patients/caregivers and health professionals.</div></front></TEI><affiliations><list><country><li>Australie</li></country><region><li>Nouvelle-Galles du Sud</li></region><settlement><li>Sydney</li></settlement><orgName><li>Université de Sydney</li></orgName></list><tree><noCountry><name sortKey="Budde, Klemens" sort="Budde, Klemens" uniqKey="Budde K" first="Klemens" last="Budde">Klemens Budde</name><name sortKey="Chadban, Steve" sort="Chadban, Steve" uniqKey="Chadban S" first="Steve" last="Chadban">Steve Chadban</name><name sortKey="Chapman, Jeremy R" sort="Chapman, Jeremy R" uniqKey="Chapman J" first="Jeremy R" last="Chapman">Jeremy R. Chapman</name><name sortKey="Craig, Jonathan C" sort="Craig, Jonathan C" uniqKey="Craig J" first="Jonathan C" last="Craig">Jonathan C. Craig</name><name sortKey="Cross, Nick" sort="Cross, Nick" uniqKey="Cross N" first="Nick" last="Cross">Nick Cross</name><name sortKey="Evangelidis, Nicole" sort="Evangelidis, Nicole" uniqKey="Evangelidis N" first="Nicole" last="Evangelidis">Nicole Evangelidis</name><name sortKey="Fung, Samuel" sort="Fung, Samuel" uniqKey="Fung S" first="Samuel" last="Fung">Samuel Fung</name><name sortKey="Gill, John" sort="Gill, John" uniqKey="Gill J" first="John" last="Gill">John Gill</name><name sortKey="Halimi, Jean Michel" sort="Halimi, Jean Michel" uniqKey="Halimi J" first="Jean-Michel" last="Halimi">Jean-Michel Halimi</name><name sortKey="Hanson, Camilla S" sort="Hanson, Camilla S" uniqKey="Hanson C" first="Camilla S" last="Hanson">Camilla S. Hanson</name><name sortKey="Howard, Kirsten" sort="Howard, Kirsten" uniqKey="Howard K" first="Kirsten" last="Howard">Kirsten Howard</name><name sortKey="Howell, Martin" sort="Howell, Martin" uniqKey="Howell M" first="Martin" last="Howell">Martin Howell</name><name sortKey="Jesudason, Shilpa" sort="Jesudason, Shilpa" uniqKey="Jesudason S" first="Shilpa" last="Jesudason">Shilpa Jesudason</name><name sortKey="Josephson, Michelle A" sort="Josephson, Michelle A" uniqKey="Josephson M" first="Michelle A" last="Josephson">Michelle A. Josephson</name><name sortKey="Kanellis, John" sort="Kanellis, John" uniqKey="Kanellis J" first="John" last="Kanellis">John Kanellis</name><name sortKey="Knight, Simon" sort="Knight, Simon" uniqKey="Knight S" first="Simon" last="Knight">Simon Knight</name><name sortKey="Mandayam, Sreedhar" sort="Mandayam, Sreedhar" uniqKey="Mandayam S" first="Sreedhar" last="Mandayam">Sreedhar Mandayam</name><name sortKey="Manera, Karine E" sort="Manera, Karine E" uniqKey="Manera K" first="Karine E" last="Manera">Karine E. Manera</name><name sortKey="Marson, Lorna" sort="Marson, Lorna" uniqKey="Marson L" first="Lorna" last="Marson">Lorna Marson</name><name sortKey="Masson, Philip" sort="Masson, Philip" uniqKey="Masson P" first="Philip" last="Masson">Philip Masson</name><name sortKey="Mcdonald, Stephen P" sort="Mcdonald, Stephen P" uniqKey="Mcdonald S" first="Stephen P" last="Mcdonald">Stephen P. Mcdonald</name><name sortKey="O Donoghue, Donal" sort="O Donoghue, Donal" uniqKey="O Donoghue D" first="Donal" last="O'Donoghue">Donal O'Donoghue</name><name sortKey="Oberbauer, Rainer" sort="Oberbauer, Rainer" uniqKey="Oberbauer R" first="Rainer" last="Oberbauer">Rainer Oberbauer</name><name sortKey="Pruett, Timothy L" sort="Pruett, Timothy L" uniqKey="Pruett T" first="Timothy L" last="Pruett">Timothy L. Pruett</name><name sortKey="Rajan, Tasleem" sort="Rajan, Tasleem" uniqKey="Rajan T" first="Tasleem" last="Rajan">Tasleem Rajan</name><name sortKey="Reese, Peter P" sort="Reese, Peter P" uniqKey="Reese P" first="Peter P" last="Reese">Peter P. Reese</name><name sortKey="Rosenbloom, David" sort="Rosenbloom, David" uniqKey="Rosenbloom D" first="David" last="Rosenbloom">David Rosenbloom</name><name sortKey="Rostaing, Lionel" sort="Rostaing, Lionel" uniqKey="Rostaing L" first="Lionel" last="Rostaing">Lionel Rostaing</name><name sortKey="Scandling, John D" sort="Scandling, John D" uniqKey="Scandling J" first="John D" last="Scandling">John D. Scandling</name><name sortKey="Shen, Jenny I" sort="Shen, Jenny I" uniqKey="Shen J" first="Jenny I" last="Shen">Jenny I. Shen</name><name sortKey="Tam Tham, Helen" sort="Tam Tham, Helen" uniqKey="Tam Tham H" first="Helen" last="Tam-Tham">Helen Tam-Tham</name><name sortKey="Tong, Allison" sort="Tong, Allison" uniqKey="Tong A" first="Allison" last="Tong">Allison Tong</name><name sortKey="Warrens, Anthony N" sort="Warrens, Anthony N" uniqKey="Warrens A" first="Anthony N" last="Warrens">Anthony N. Warrens</name><name sortKey="Wong, Germaine" sort="Wong, Germaine" uniqKey="Wong G" first="Germaine" last="Wong">Germaine Wong</name></noCountry><country name="Australie"><region name="Nouvelle-Galles du Sud"><name sortKey="Sautenet, Benedicte" sort="Sautenet, Benedicte" uniqKey="Sautenet B" first="Bénédicte" last="Sautenet">Bénédicte Sautenet</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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